Little Feet - Long Walk

Hello and welcome to my blog. This blog is the journey of our family after Millie, our 2 year old daughter, was discovered to have a large brain tumour. The tumour was caused by an aggresive cancer named anaplastic ependymoma. Please feel free to read as much as you want and spread the word. If you want to know more details about the diagnosis then it is best to start at "The beginning ... " which was written in May 2011. But you are welcome to follow us from today. I have created pages that summarise the events leading up to the start of going to Florida for proton radiotherapy at the beginning of June 2011, about 8 weeks after diagnosis.

Sunday 24 July 2011

The beach has worn us out!

Millie really enjoyed her time on the beach this morning and continued to exhibit the explorative traits that she was starting to show last may. She kept wandering off! Without a care in the world, going to see whatever she wanted to see. And she really enjoyed jumping the waves, well, with Mummy's help of course! Daddy showed her how to kick her feet in the water when she was picked up, so now she wants to do it all the time and is a really good kicker! Got me wet! It is just such a shame we have to keep her dry from the bottom up so that her wigglies don't get wet and then risk infection. Last thing we want. I am trying to find out if we can get them removed before we leave as that would be fantastic. However, we probably won;t be able to get her wet still as we will need to keep the area dry for about 10 days. We might be able to get away with a plastic patch. It would just be great if we could take her to the beach before we leave and let her get as wet as she wants in the very warm water. It is, so I have been told, as warm in the sea as it is in the hotel pool! It is definately warm -like a warm bath. Makes a difference to the enjoyment of a beach.

Millie was so tired that she fell aslepp on my whilst we were eating lunch. She had some drink and a few bites then curled up. We were eating by the hotel pool so I carried her up to the room and we finished eating on the balcony overlooking the pool and sea. We even saw some of a wedding. All the blokes dressed up in black 3 piece suits - not a great thing to wear in this heat. But they all looked smart as they wandered down to the beach. The large smile on the groom's face said it all!

Millie finally woke up at about half 3 so we headed into St Augustine. It was very hot in town. Last week we had bought tickets to go into an attraction called Ripley's Believe It or Not! So we did that. It took about an hour and a half and had some of the weirdest things from around the world. Ripley traveled and became well known for traveling to 'exotic' places. A lot of it is now in St Augustine. It was vaguely interesting! Afterwards we headed down the road to find some food. We had been recommended a place which we did find and eat in but it didn't do anything for us. The food was passable - I had a tuna salad and I now know how barely cooked tuna really tastes! It was pretty good, just the rest of the salad let it down. After tea, we wandered along the shopping street until it got dark and the bugs started annoying us. Millie is sleeping soundly, she curled up before I had finished reading her book. I shall be following very soon - it will be early tonight. I am shattered. We are all shattered.

More beach tomorrow and then a leisurely afternoon before returning back to RMH to get ready for our last full week. Nearly there - I'm sure it will drag.

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